WHO
© Credits

Amplifying the lived experience of people affected by cancer

 

WHO launches phase 2 of “Strengthening the voice of people affected by cancer”

Have you or your loved one ever been diagnosed with cancer?

Have you had a loved one who has died from cancer?

We want and need to learn from your experience.

During their lifetime, 1 in 5 people are diagnosed with cancer. Nearly every family around the world is affected by cancer, either directly or as caregivers of someone who has had cancer.

We need to learn more about the emotional and practical needs of people affected by cancer, to offer better support.

WHO's "Global survey on the lived experience of people affected by cancer" was designed in collaboration with those affected by cancer.

We invite people with a lived cancer experience as well as their family members or caregivers, including partners, parents, children, siblings, to share their experience from around the world. The survey focuses on the social, emotional and financial impacts of cancer

Survey results will help develop programmes to improve the well-being of people diagnosed with cancer, their families, and caregivers.

As someone affected by cancer, your voice can change how care is provided around the globe.

 

1 in 5 people

are diagnosed

with cancer during their lifetime

Learn more

In 4 out of 5

countries

cancer was one of the leading health concerns

Learn more

Global survey on the lived experience of people affected by cancer

A graphical image with the text "take the survey"

Complete the global survey on the lived experience of people affected by cancer

The survey is available in 7 languages:

ArabicChineseEnglishFrenchPortugueseRussianSpanish

Background

For too long, the focus in cancer control has been on clinical care and not on the broader needs of people affected by cancer,” said Dr Tedros Adhanom Ghebreyesus, Director-General of the World Health Organization. “Global cancer policies must be shaped by more than data and scientific research, to include the voices and insight of people impacted by the disease."

We need to learn more about the emotional and practical needs of people affected by cancer, to offer better people-centred care and design broader supportive care packages and policies that meet the needs of people affected by cancer.

“We are making a long-term commitment to place people affected by cancer properly at the centre of the agenda, to co-create better solutions” explained Dr Bente Mikkelsen, Director of the Department of Noncommunicable Diseases at WHO.

In collaboration with those affected by cancer, a new "Global survey on the lived experience of people affected by cancer" has been designed. The survey focuses on the social, emotional and financial impacts of cancer. Survey results will help develop programmes to improve the well-being of people diagnosed with cancer, their families, and caregivers.  

Lived experience photo exhibition

Hear from persons affected by cancer on their experiences with cancer care, treatment, survivorship and advocacy.

News and events