Amplifying the lived experience of people affected by cancer

Nearly every family globally is affected by cancer, either directly – 1 in 5 people are diagnosed with cancer during their lifetime – or as caregivers or family members. A cancer diagnosis triggers a broad and profound effect on the health and well-being of all those involved.

Understanding and amplifying the lived experiences of people affected by cancer can create more effective systems of support. Yet, the focus in cancer control has largely been on clinical care and not on the broader needs of people affected by cancer.

The transfer and reorientation of power to people with lived experience is essential to ensure adherence to the principles of respect, value and dignity in meaningful engagement and support for health for all.

WHO's "Global survey on the lived experience of people affected by cancer" builds on the WHO Framework for Meaningful Engagement of People Living with Noncommunicable diseases (PLWNCDs) and was designed with and is intended to amplify the voices of those affected by cancer – survivors, caregivers and bereaved. Results from the survey will feed into design policies and programmes to offer better well-being in the context of a cancer diagnosis. 

Get involved, shape the future

Engaging people affected by cancer is an opportunity to share the future of cancer control. If you have been affected by cancer, please lend your voice to this campaign! Your voice matters.

Complete the Global survey on the lived experience of people affected by cancer